Jamie C.
5/5
Yesterday I was given a true lifesaving gift & wanted to post today bc it could've gone SO badly otherwise.
My local GP had essentially abandoned me for no particular reason over an essential med for me, w/no explanation given to my routine pharmacy other than "not appropriate to refill", though she'd been doing it for the past 8 mos before that.
I'm in rural WI, but I'd not only brought hard copies of my recs, but /s/ med release forms here.
So why didn't they, the med staff, mucho less my attending, NOT know what Addison's Disease was, STILL, after my being here almost 9 mos?! SHE left a note on my latest req for an emergency refill, that she couldn't understand why I even needed to be on steroids?!
So I came to the Marshfield Urgent/ER yesterday (25Aug2024), hoping against hope that someone, ANYONE, would know what Addison's was. Last time? No one had an inkling. They Dx'd diarrhea & sent me home, despite my asking almost EVERYONE but the orderly, if they knew what it was. Everyone said, no or Not a clue. I even offered a notary to give her the Google link! Sure kindly declined, said the Drs would probably have it. Apparently not. I was discharged that time w/ pills to show down my gut, & told to drink rehydration drinks. I lost 12 lbs of fluids in 72 hrs & had dangerously low blood of 3 minerals, but I was dehydrated despite drinking 3 -4 qts of water/24hrs, to which I was adding β
tsp of salt e/. Couldn't keep anything down, & 1 apple, peeled & cored, went thru me in just over 4 hrs. I times it, yeah.
So yesterday, when the Register Admin I asked if she knew what Addison's was said, Yes, it's to do w/inability to issue cortisol, I almost fainted.
Then the Triage Nurse, also knew. I told her she was the 2nd medical person EVER in this area to say that. I just shut up, just mind blown!
And the Dr! He knew too! And asked me ALL SORTS of questions I'd never been asked before, not even in San Antonio, where I'd been Dx'd in the 1st place.
And truly, I'd run out of meds except if I'd gone in to take out all my doses for the next week that were meant for just the afternoons. That was only 1/12th of a daily dose, folks. Not enough to keep me alive from Sunday to Thur, when I'm supposed to see my PA, the only med pro seeing patients in a 25 mi radius from where I live.
And my son is scheduled to be working 13-14 days in the next 4 days, so even if he can take a day off to take me to the ER, why? Bc of an incompetent or care-less med pro, who btw, has been absent more than present in the clinic this Summer? Bet is she's been interviewing for another position in a bigger town. Would I blame her? Probably not, but if you're not going to be committed to the pts to whom you made a contractual obligation, then at least keep the Drs who are covering for you up to date on your complex cases. They are more likely to be calling when your not there & it's the Front Ofc who'll be left holding the bag full of kittens you left drowning. Not cool AT ALL.
The Dr this Sun @ Marshfield Medical Center, Beaver Dam, who was on call, name doesn't appear on ANY of my discharge docs btw, was my Hail Mary who threw the touch down pass this weekend. He quite literally saved my life.